Open Medicine Foundation (OMF)

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Open Medicine Foundation (OMF)

@openmedf.bsky.social

OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
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From the OMF supported Medical Education Resource Center at BHC: "Comorbidities and Lesser Studied Pathologies in Infection-Associated Chronic Conditions," presented by MIT research scientist Beth Pollack. ➡️ youtu.be/aU15jg7qSsY
Comorbidities and Less Studied Pathologies: A Comprehensive Approach to IACCsyoutu.be May 2, 2024 Long COVID and Post-Viral Syndromes ECHO Comorbidities and Less Studied Pathologies: A Comprehensive Approach to Infection Associated Chronic Illnesses Bateman Horne Center and the University of Utah Health ECHO teams join forces once again to provide a case-based learning series illuminating strategies for assessment and management of Long COVID (PASC), ME/CFS, and related comorbid conditions. Beth is a Harvard-educated and trained Research Scientist at MIT where she leads biomedical research on a group of complex chronic illnesses and the connections between them. Topics Discussed - Complex Chronic Illness Comorbidities - Onset patterns across Illnesses - Less studied pathologies across illnesses -Next steps for the field of complex chronic illnesses -How to study and incorporate these comorbidities and pathologies Note to community members: We advise viewers to always speak with their medical care team before making any adjustments or changes to their current care regimen. Bateman Horne Center’s involvement in this program is made possible with the additional support of the Open Medicine Foundation. TIME STAMPS 00:00 Introduction 03:14 Overview of Long COVID and ME/CFS overlaps 05:08 Comorbidities and shared pathophysiology 06:40 ME/CFS and comorbid conditions 07:58 Overlapping symptoms across the illness group 08:34 Common triggers and onset patterns 12:48 Some shared risk factors 14:44 Less studied pathologies in ME/CFS 16:14 Environmental sensitivities 18:10 Connective tissue disorders 20:56 Spinal conditions 24:19 Reproductive health findings across illnesses 30:29 Endometriosis and infection research 31:40 Research priorities for female reproductive health in Long COVID, ME/CFS, etc 32:55 Next steps - clinical 35:19 Next steps - research 38:50 Current clinical study 42:37 Incorporating comorbidities and less studied pathologies into research 44:55 References 44:59 Acknowledgements 46:04 Q&A
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➡️ Add impact to your inbox! Subscribe to OMF newsletters 👉 ow.ly/G3Cy50SBtVg. When you do, you'll be in the know about all things OMF: research updates, special announcements, campaigns and more. Your information will be kept confidential, and you can unsubscribe anytime. #pwME #pwLC
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New article in the Cambridge Independent featuring Ron Davis, PhD, and Janet Dafoe, PhD: ‘We will find a cure for ME’, pledges Stanford’s Prof Ron Davis on visit to Cambridge. Read more about Ron Davis's work in Mike Scialom's article 👉 ow.ly/zjte50SAs1Y #pwME #pwLC #mecfs #OMFResearch
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We are overflowing with gratitude following the incredible live-stream event hosted by Dianna Cowern (Physics Girl) and her team. What started as a $10,000 goal turned into a mind-blowing $121,983 fundraiser, thanks to your incredible support! 🌟💙 Thank you to everyone involved! #pwME #pwLC
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Been listening to this while lying in bed in the dark. Nice to hear people talking about the realities of #ME/CFS in an extended format, informally, as opposed to short and sweet advocacy spots. Thank you Dianna for being so vulnerable and raising so much money for @openmedf.bsky.social #LongCovid
The Physics Girl fundraiser has blown past their initial $10,000 fundraising goal for the OMF and is now raised to $100,000. Viewers hovering around 4k. You love to see it. www.youtube.com/live/v8HWt9g...
Physics Girl LIVE with long Covidwww.youtube.com Dianna is Live streaming a day in her life as someone suffering from long COVID and ME/CFS. The purpose of the Livestream is to raise money and awareness for...
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📣 Join Physics Girl's Livestream! Dianna will be livestreaming a day in her life, showcasing what it’s like to suffer from #LongCOVID and #MECFS. All proceeds from this event will benefit OMF. 🗓️ July 6, 2024, 6:45 AM to 6:00 PM PT on PhysicsGirl YouTube channel. ℹ️ More info: omf.ngo/physics-girl/
Join Physics Girl's Livestream: A Day in the Life with Long COVID and ME/CFS - Open Medicine Foundationomf.ngo Experience a day in the life of Dianna Cowern, aka Physics Girl, living with Long COVID and ME/CFS. Join the livestream on July 6, 2024, supporting OMF research.
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🎆 Happy 4th of July from OMF! 🎆 As we come together to celebrate Independence Day in the US, we are reminded of the values of freedom, resilience, and unity. No matter where you are in the world, let's remember the power of unity and the strength of our global community.
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IIMEC16 CONFERENCE: 28 JUNE 2024 📸 1: David Systrom, MD, PhD, presenting 📸 2: Ron Davis, PhD, presenting 📸 3: Panel discussion
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📸Day 2 at #BRMEC13 ▶️ Maureen Hanson, PhD, presenting on: ‘Plasma Proteomics in Response to Exercise’ ▶️ Wenzhong Xiao, PhD, presenting on: ‘Identifying Potential Candidates for Clinical Trials Using AI Network Medicine’ The # IIMEC16 starts tomorrow. Full agenda: www.investinme.org/IIMEC16.shtml
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🎉 BRMEC13: Day 1 - 26th June 2024 🎉 Yesterday, Jonas Bergquist, MD, PhD, chaired the Physiology session, and David Systrom, MD, PhD, presented on ‘Insights from Invasive Cardiopulmonary Exercise.’
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On June 18, Dr. Wenzhong Xiao, the Director of OMF’s Computational Research Center, released a preprint of his project investigating how metabolic dysfunction contributes to shared symptoms seen in ME/CFS and Long COVID. Learn more 👉 ow.ly/YRzZ50SokAZ
Systems Modeling Reveals Shared Metabolic Dysregulation and Novel Therapeutic Treatments in ME/CFS and Long COVID - Open Medicine Foundationow.ly Systems Modeling Reveals Shared Metabolic Dysregulation and Novel Therapeutic Treatments in ME/CFS and Long COVID
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We are thrilled to announce that, as a direct outcome of the Canberra Roundtable convened in late March and led by Emerge Australia with the support of OMF Australia, the Australian government has committed funding to update the clinical guidelines for ME/CFS and Long COVID. ow.ly/t0CJ50SnrVJ
Major Milestone: Australian Government Funds Update of ME/CFS & Long COVID Clinical Guidelines - Open Medicine Foundationow.ly nnouncing a significant milestone: The Australian government, supported by Emerge Australia and Open Medicine Foundation Australia, commits to updating clinical guidelines for ME/CFS and Long COVID, e...
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May Education Report from the OMF Supported Medical Education Resource Center (MERC) at Bateman Horne Center. Swipe through the slides to see our May Education Report. ➡Long COVID and Post-Viral Syndromes lectures: bit.ly/LongCOVIDand... ➡Continuing Medical Education: bit.ly/3zde17C
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Happy Father's Day from all of us at Open Medicine Foundation! 💙 Special appreciation for fathers touched by ME/CFS, Long COVID, and related diseases. Your strength is incredible. You are not alone—hope and research continue! #FathersDay #OMF
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ICYMI!🎙️Exclusive Interview: Fran Haddock's Journey with ME/CFS & Long COVID We are excited to share an exclusive video interview featuring Fran Haddock, a dedicated advocate for MECFS, chronic illness, environmental, and social justice causes. ow.ly/YPuI50SiZ11
Exclusive Interview: Fran Haddock's Journey with ME/CFS & Long COVIDow.ly Discover the powerful story of Fran Haddock, a passionate advocate for ME/CFS, chronic illness, environmental, and social justice causes. Fran’s profound six...
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Imagine if every item you added to your cart could help fuel OMF's vital research. Well, now it can! With iGive you can shop online at 1,700+ stores, and a percentage of your purchase will go directly to OMF, all at no cost to you or OMF. Shop & support OMF for free 👉 ow.ly/rlha50SieTb!
iGive - You Shop. Your Charity Gets Money. For Free.™ow.ly Since 1997 support Open Medicine Foundation when you shop 1,700 stores. Register today!
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One year ago, we launched OMF StudyME Registry, a groundbreaking initiative designed to streamline the process for researchers seeking participants for studies on #mecfs, #LongCOVID, #Fibromyalgia, and other post-infection #diseases. Join us today and make a difference 👉 ow.ly/U74v50SebFB.
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New Article in The Guardian by Sam Wollaston: ‘I could bench-press 100 kg. Now, I can’t walk’: Lucy’s life with long COVID Read this moving article 👇https://theguardian.com/society/article/2024/jun/05/i-could-bench-press-100kg-now-i-cant-walk-lucys-life-with-long-covid
‘I could bench-press 100kg. Now, I can’t walk’: Lucy’s life with long Covidtheguardian.com Before the pandemic, Lucy Keighley ran a gym, worked as a personal trainer and went on gruelling, exhilarating runs. But after three and a half years of illness, she isn’t sure she will ever recover