Comorbidities and Less Studied Pathologies: A Comprehensive Approach to IACCsyoutu.be May 2, 2024 Long COVID and Post-Viral Syndromes ECHO Comorbidities and Less Studied Pathologies: A Comprehensive Approach to Infection Associated Chronic Illnesses Bateman Horne Center and the University of Utah Health ECHO teams join forces once again to provide a case-based learning series illuminating strategies for assessment and management of Long COVID (PASC), ME/CFS, and related comorbid conditions. Beth is a Harvard-educated and trained Research Scientist at MIT where she leads biomedical research on a group of complex chronic illnesses and the connections between them. Topics Discussed - Complex Chronic Illness Comorbidities - Onset patterns across Illnesses - Less studied pathologies across illnesses -Next steps for the field of complex chronic illnesses -How to study and incorporate these comorbidities and pathologies Note to community members: We advise viewers to always speak with their medical care team before making any adjustments or changes to their current care regimen. Bateman Horne Center’s involvement in this program is made possible with the additional support of the Open Medicine Foundation. TIME STAMPS 00:00 Introduction 03:14 Overview of Long COVID and ME/CFS overlaps 05:08 Comorbidities and shared pathophysiology 06:40 ME/CFS and comorbid conditions 07:58 Overlapping symptoms across the illness group 08:34 Common triggers and onset patterns 12:48 Some shared risk factors 14:44 Less studied pathologies in ME/CFS 16:14 Environmental sensitivities 18:10 Connective tissue disorders 20:56 Spinal conditions 24:19 Reproductive health findings across illnesses 30:29 Endometriosis and infection research 31:40 Research priorities for female reproductive health in Long COVID, ME/CFS, etc 32:55 Next steps - clinical 35:19 Next steps - research 38:50 Current clinical study 42:37 Incorporating comorbidities and less studied pathologies into research 44:55 References 44:59 Acknowledgements 46:04 Q&A
Open Medicine Foundation (OMF)
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
Staying within Your Energy Envelope by Modifying Tasksyoutu.be Amy Mooney, MS OTR/L discusses the details of pacing strategies from the perspective of an occupational therapist and mother of an adult daughter with severe...
Cardiopulmonary and metabolic responses during a 2-day CPET in myalgic encephalomyelitis/chronic fatigue syndrome: translating reduced oxygen consumption to impairment status to treatment consideratio...ow.ly Background Post-exertional malaise (PEM), the hallmark symptom of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), represents a constellation of abnormal responses to physical, cognitive, ...
Join Physics Girl's Livestream: A Day in the Life with Long COVID and ME/CFS - Open Medicine Foundationomf.ngo Experience a day in the life of Dianna Cowern, aka Physics Girl, living with Long COVID and ME/CFS. Join the livestream on July 6, 2024, supporting OMF research.
Systems Modeling Reveals Shared Metabolic Dysregulation and Novel Therapeutic Treatments in ME/CFS and Long COVID - Open Medicine Foundationow.ly Systems Modeling Reveals Shared Metabolic Dysregulation and Novel Therapeutic Treatments in ME/CFS and Long COVID
The Basics: Post-Exertional Malaise (PEM)youtu.be Clayton Powers, DPT, discusses the basics of post-exertional malaise (PEM). - PEM definition - PEM symptoms - PEM triggers This video is the second in our series called The Basics. Upcoming videos will cover topics such as POTS with and without PEM, pneumatic compression, recognizing your threshold, app analogy, and energy conservation. Note to community members: We advise viewers to always speak with their medical care team prior to making any adjustments or changes to their current regimen. Bateman Horne Center’s involvement in this program is made possible with the additional support of Open Medicine Foundation and the Whittemore Peterson Institute and donors like you.
SPOT-ME: Serial Pediatric Omics Tracking in ME/CFS - OMF Australiawww.omfaustralia.ngo This study seeks to understand pathological mechanisms of pediatric ME/CFS (13 to 18 years old), using case-control and longitudinal study design that meshes clinical measures and omics methods.
Systems Modeling Reveals Shared Metabolic Dysregulation and Novel Therapeutic Treatments in ME/CFS and Long COVID - Open Medicine Foundationow.ly Systems Modeling Reveals Shared Metabolic Dysregulation and Novel Therapeutic Treatments in ME/CFS and Long COVID
Major Milestone: Australian Government Funds Update of ME/CFS & Long COVID Clinical Guidelines - Open Medicine Foundationow.ly nnouncing a significant milestone: The Australian government, supported by Emerge Australia and Open Medicine Foundation Australia, commits to updating clinical guidelines for ME/CFS and Long COVID, e...
Personalised Treatment Trials: Monitoring and Improving the Connection of Treatments to Patientswww.youtube.com The Melbourne ME/CFS Collaboration is conducting a study to closely watch how different treatments affect ME/CFS and Long COVID patients, using a very tailor...
Personalized Treatment Trials: Video Update! - Open Medicine Foundationwww.omf.ngo Learn more about the Personalized Treatment Trials project from Chris Armstrong, Director of Melbourne ME/CFS Collaboration, in his latest video update.
Exclusive Interview: Fran Haddock's Journey with ME/CFS & Long COVIDow.ly Discover the powerful story of Fran Haddock, a passionate advocate for ME/CFS, chronic illness, environmental, and social justice causes. Fran’s profound six...
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A Long COVID Definition: A Chronic, Systemic Disease State with Profound Consequencesow.ly Read online, download a free PDF, or order a copy in print.
The Popular Sugar Substitute Xylitol Could Have Some Major Heart-Health Riskstime.com A study reports that a popular sugar substitute could do more harm than good for the heart.
‘I could bench-press 100kg. Now, I can’t walk’: Lucy’s life with long Covidtheguardian.com Before the pandemic, Lucy Keighley ran a gym, worked as a personal trainer and went on gruelling, exhilarating runs. But after three and a half years of illness, she isn’t sure she will ever recover