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Johns Hopkins is doing a long-COVID survey and apparently is having trouble finding controls -- people who haven't had COVID. If this is you, consider giving them some clicks. @violetblue.bsky.social thought you may want to boost. covid-long.com
Johns Hopkins COVID Long Studycovid-long.com The Johns Hopkins Bloomberg School of Public Health is conducting research about the COVID-19 pandemic. Participate in this one-time, 10-15 minute survey.
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I'm not one to (a) second guess scientists (b) minimize the reach of COVID generally but I think I've spotted the problem.
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Like...yeah it's probably hard to find someone who's never had either a cough or diarrhea
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I have those things a lot and always tested for COVID, and never came up positive until last week four year streak busted 😔
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That sucks! I'm sorry! I've never tested positive, and had one respiratory event this winter which may have been C19 but no doctor thinks so. But definitely can't represent myself as part of the control group
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I feel very fortunate to have gone so long without it, and to have had a light case!
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Since pre-Covid? *raises hand* Fully boosted, arrant masker, avoider of high-risk situations. Not sick a day since January 2019 (not 2020), when I was getting over my last chest infection.
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I can’t remember the last time I was sick beyond “it was before I had Son” who turns 20 this year. I am also afraid that my immune system, for this very reason, will wreak absolute havoc with me if I should actually get infected with Covid.
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Well then you're lucky to have no ongoing issues that present in any of the ways listed, congratulations. Because I did the same through at least end 2022 and I had just about all of em at one point or another
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The dozens of us who still haven't had any symptoms since Covid are indeed lucky, and aren't you glad we exist so the study has some controls? Or is "misery loves company" more your thing?
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Yeah! I actually came here to poke around and see if anyone said this before I posted something similar (yeah, I'm that guy who googles before asking a question generally, LOL) But yeah, I have a bunch of these symptoms intermittently and I don't leave the house! And here I thought I'd be a control!
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Yeah. I had a bad runny nose last year during peak allergy season. And I'm in AZ and not a native to AZ so these plants, whew. But I'm pretty sure I've never had COVID.
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Yeah, this. I've never had a positive test result, but this is the point where I quit the survey. I don't believe I've gone a year in my life without any of those symptoms.
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A "yes but I tested negative for COVID" answer there would have been the option that didn't leave us second-guessing the survey.
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Fatigue and muscle aches are common side effects of getting vaccinated!!! It's a poorly worded question.
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Yes!! And then it slots you into assuming you've had COVID, had a COVID exposure, and asks when that happened.
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Thiiiis. I've never tested positive but I've certainly had colds in the last four years. One or more of them may well have been covid.
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Considering I've never tested positive and that phrasing is probably a little poor I'm blazing ahead.
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I parsed that as “did you get or think you got covid?” And to that I have to say, no. My recurring nausea has always been unrelated every time somehow.
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Yes - this is a terrible start. They ask for specifics once you're in the survey but you can't tell from this page. They really should have qualified this. I'm sure many people skip the survey because of this one page.
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It still assumes that a yes answer to these extremely broad symptoms is a "I'm pretty sure I've had COVID" answer.
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*I* sure did! Thanks for letting me know, I may go back to it
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Oh good. I am taken aback that they designed it this way.
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Yeah I've never tested positive for covid and don't think I've ever gotten it but I got to this page and am scratching my head. Lots of things that aren't covid have these symptoms? I guess I just answer "No" and assume it's bad phrasing?
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Cough, shortness of breath, difficulty breathing, fatigue, headaches, sore throat, congestion/runny nose are all near daily things for me. Never had covid, just live with those things constantly.
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i can’t get it to load after i do the proving im not a robot part lol. but i will try again later!
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Thank you & please do! Hopefully the page loading issue means that they’re getting some good responses and not just some random tech issue.
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Yeah, this got reposted on Tumblr and apparently got so many responses they had to pause the survey for a few days.
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Page loading was a bit slow, but it worked fine for me.
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Just finished it; very worthwhile; best!
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I found I had to turn off my VPN
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It instructs you not to hit the "submit" on that page. ?
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warning for those completing this: they estimate about 20 minutes to complete, it took me almost an hour (I'm not actually done yet). The servers are GLACIALLY slow, spending like 30 seconds+ per page submission.
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also the captcha submission gets caught up by this too. After completing the RECAPTCHA form and hitting submit, _wait_. If you hit submit more than once, it boots you.
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here to perform my civic and scientific duty, will check it out FYI @rahaeli.bsky.social if you haven't see this yet
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Filled it out and reposted!
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Of course! Thanks for still doing the work. #CovidIsntOver
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Took 3 Captchas to get in, then survey hung up on the second real question. No wonder they’re having trouble with responses.
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You need detailed vaccination records handy to answer some of the questions.
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Finished. But quietly giggling at the questions about sleep. Doing a survey about not sleeping while not sleeping.
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