Matt Lazell-Fairman

@mfairma.bsky.social

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ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS.

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If this is relevant to anyone, I did a deep dive into this for a Black disabled friend a while back, and the only pulse ox I could find that had specifically been calibrated to read accurately on Black skin, with independent verification, is the Nonin Connect TruO2.

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Matt Lazell-Fairman

Of course you're not ok, you're being asked to suppress your natural empathy to deny your own witness of genocide we have unprecedented access to witness.

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Matt Lazell-Fairman

Marazzano quotes @edyong209.bsky.social’s most recent #LongCOVID article in her introduction to the NIH conference.

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Matt Lazell-Fairman

Proud to have co-authored this Letter to the Editor with Dr Harriet Carroll in which we challenge the paper titled “Exercise Is the Most Important Medicine for #COVID19" #LongCovid #MEcfs journals.lww.com/acsm-csmr/ci...

Exercise Is the Most Important Medicine for COVID-19 : Current Sports Medicine Reportsjournals.lww.com An abstract is unavailable.

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Matt Lazell-Fairman

This is an exciting new venture. @betsyladyzhets.bsky.social and @mileswgriffis.bsky.social are the best of the best of the best, and their new venture is well worth supporting.

Help us reach our fundraising goal this #GivingTuesday! We know many in the Long Covid community won't be able to donate so please help us by sharing our fundraiser link with family and friends who can 🙏 All donations are tax-deductible. Donate today: the-sick-times.fundjournalism.org/donate/

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Matt Lazell-Fairman

One of the hardest parts of ME/CFS & Long Covid has been losing my ability to be creative. My brain simply can’t hold enough things at the same time for me to be able to connect them in interesting ways. Everything that exists, exists singularly. There’s so much loneliness to it.

I wrote an essay about my experience thus far with traumatic brain injury. It took a very long time to write, and required a lot of naps, but I'm pretty proud of it. I hope it might help someone else who is experiencing something similar. Here's a gift link: www.nytimes.com/interactive/...

Opinion | Rebuilding Myself After Brain Injury, Sentence by Sentencewww.nytimes.com Am I still a writer if I’ve lost my words?

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Matt Lazell-Fairman

I love this profile of the remarkable work of Martha Estes, aka @LongCovidPharmD on Twitter. undark.org/2023/10/23/l...

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Matt Lazell-Fairman

I'm just dipping my toe in here. I'm terrible with technology, so every new thing is a challenge. For my first post, I figured I'd offer a link to Berkeley's current crowdfunding campaign for Trial By Error, which focused on ME/CFS, long Covid, etc: virology.ws/2023/11/16/t...

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Matt Lazell-Fairman

“Records obtained and analyzed by POLITICO show that computer facial recognition in New Orleans has low effectiveness, is rarely associated with arrests and is disproportionately used on Black people.”

‘Wholly ineffective and pretty obviously racist’: Inside New Orleans’ struggle with facial-rec...www.politico.com Records obtained and analyzed by POLITICO reveal the practice failed to identify suspects a majority of the time and is disproportionately used against Black people.

I had a similar experience with Leon Uris’ Exodus, finding it on my mom’s shelf at age 10. It’s dangerously one-sided tale of heroism and triumph enthralled me, salving my gentile guilt over stories of the Holocaust we’d read in school and seen on TV. I’m fortunate my mom noticed and set me straight

Raised to see Israel as a ‘Jewish Disneyland’, two US film-makers are telling a different storywww.theguardian.com A new documentary argues some young Jewish Americans – including the directors themselves – have been raised in a system that demands pro-Israel activism

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News on the long-delayed Cochrane MEcfs graded exercise review. Plans: 1. A prominent editorial statement (now in draft) to highlight problems with the existing review. 2. Consultation on a summary of flaws with existing/past exercise reviews. 3. Consultation on the protocol for the new review. 1/n

Cochrane Exercise and ME/CFS Review Update: November 2023community.cochrane.org November 2023 Report by Hilda Bastian, Independent Advisory Group Lead Posted online: 10 November 2023 Note: Background information on this project is here. The views expressed in this report are tho...

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Matt Lazell-Fairman

#MEAction: New Grassroots Program Coming Soon A new program called Canary Corps will be launched in the United States in early 2024. It will help people with #MEcfs, #LongCovid, & other infection-associated chronic illness find & access local services & support www.meaction.net/2023/11/06/c... #PwME

CANARY CORPS – New Grassroots Program Coming Soonwww.meaction.net Run by, and built for, our sick and disabled community.

For anyone feeling too intimidated to start their app for SSDI, HowToGetOn is an incredible resource that will hold your hand through the process. Don’t let your eligibility lapse without applying and don’t give up at first rejection. howtogeton.wordpress.com

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Matt Lazell-Fairman

Blue art blue art Post your blue #art 🌊🏊‍♀️🎨

Blue art blue art post your blue #art! 🐡 🧪🩺

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An important read.

Link www.nytimes.com/2023/10/17/r...

I Live in My Carwww.nytimes.com Dozens of parking lots have opened across the country for working people who can afford a car but not rent.

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Matt Lazell-Fairman

Just a quick shout out to say if you want to take part in our Post-Exertional Mayonnaise podcast about living grief and chronic illness you can email me at [email protected] for more info! #chronicillness #MECFS thanks @cabruce.bsky.social for the inspiration!

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Matt Lazell-Fairman

Happy to see @mfairma.bsky.social here! He wrote an extraordinary essay about how John Prine has helped him accept a life of illness: m-lazell-fairman.medium.com/how-singer-s...

How Singer-Songwriter John Prine Helped Me Accept A Life of Illnessm-lazell-fairman.medium.com It’s been a year since Prine died of COVID-19. His death made me reflect on what it means to be sick and how his songs helped me learn to…

A friend in Warsaw desperately needs help. He's very severely ill with ME, mostly blind, and has limited family support. His condition has worsened and he needs IRL support (emotional and ideally light caregiving, could be paid). Retweets appreciated.

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Matt Lazell-Fairman

“The Weight of ME/CFS”, oil on paper. Portrait of my husband, Matt. #mecfs #pwME #chronicillness #art #oilpainting #portfolioday

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