emily fraser 🌿🐌✨

@emilyesfraser.bsky.social

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Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet

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emily fraser 🌿🐌✨

Do not obey in advance.

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emily fraser 🌿🐌✨

I never thought I would read "Masks are proven to protect against the transmission of Covid-19 and other airborne viruses" in The New York Times but there it is. Thank you Violet Affleck. www.nytimes.com/2024/07/10/s...

A Daughter of Hollywood Royalty Appeals to Los Angeles: No Mask Banswww.nytimes.com Violet Affleck, the eldest child of Jennifer Garner and Ben Affleck, called for greater access to masks in a short speech during which she revealed her own “post-viral condition.”

Being extremely sick for an extremely long time means losing the capacity to desire, not out of depression but out of self preservation. Letting yourself emote about the future when there’s no end in sight to the suffering of the present = opening yourself up to a thousandfold more suffering

Simone asks what Dianna misses the most. Kyle: It's really difficult to put herself in that position of wanting, healing is not linear, tomorrow she could start getting better or worse. You have to just treat each day as it is. If she were better, she'd engage with all her friends, and go on a hike

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emily fraser 🌿🐌✨

Hey folks! Diana the Physics Girl, who's been ill with severe Long COVID and ME/CFS for a couple years now, is doing an all-day livestream of what her life is like, with really interesting pre-recorded interviews playing alongside! www.youtube.com/live/v8HWt9g...

Physics Girl LIVE with long Covidwww.youtube.com Dianna is Live streaming a day in her life as someone suffering from long COVID and ME/CFS. The purpose of the Livestream is to raise money and awareness for...

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emily fraser 🌿🐌✨

Happy Disability Pride Month! Disabled people are people and deserve opportunity, access, inclusion, and justice. If you are an able bodied person, can you make a commitment this month to educate yourself on disability justice? Here's a good place to start: www.sinsinvalid.org

Sins Invalidwww.sinsinvalid.org Sins Invalid is a disability justice performance project that centers people of color, queers, nonbinary and trans people with disabilities.

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emily fraser 🌿🐌✨

One of the most immediate material differences you can make in your life and the lives of the people in your communities is to commit to wearing a mask again. It will profoundly positively affect everyone you come into contact with and tangibly make this world safer for all of us.

The world sucks and things are bad but hey, you know what you can do right now to make things easier on yourself and others? Wear a face mask. We have to be alive to fight back.

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emily fraser 🌿🐌✨

#MECFS is commonly diagnosed in kids 10-19, & in adults, ~late 20s to late 30s: a bimodal distribution. Anecdotally, some kids with ME/CFS who recover have a 'second' onset at the second spike. About half of folks who have #LongCOVID meet #MECFS criteria. 🧪

ok i have another quote tweet prompt. what's something, big or small, related to your job or hobby, that most people don't know that you would like to have them know? it can be a concept, a piece of history, some vocabulary, or something else.

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emily fraser 🌿🐌✨

remember when they told us kids weren’t really affected by covid so they could get everyone back to school and their parents to work and now everyone’s immune system is fucked and everyone’s sick all the time cuz no one is putting two and two together and that train just keeps rolling without brakes

The myth that COVID is 'harmless' for kids has left millions of children with long COVID invisible. Here's what they want you to knowwww.abc.net.au They're losing their formative years to this debilitating disease. But for too many children with long COVID, finding help is a frustrating and traumatic process that leaves them feeling isolated and ...

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emily fraser 🌿🐌✨

In cased you missed it, my buddies Don and Kate have a running streak of posting roses at each other that they discover around town, and it's quite enjoyable

Some somewhat scraggly #roses bit with very nice colouring, latest salvo in #Toronto’s East End vs West End #WaroftheRoses #flowers #plants

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emily fraser 🌿🐌✨

If you are desperate for something to do right now in support of Palestine, remember this list of vetted crowdfunds to help Palestinians escape the violence of genocide.

Operation Olive Branchdocs.google.com NAVIGATION <a href="https://buymeacoffee.com/operationolivebranch">URGENT: Please support our BUYMEACOFFEE for Bahrain Medical Aid and the OOB Website build</a> <a href="https://docs.google.com/sprea...

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emily fraser 🌿🐌✨

I read a journal article showing every dollar donated to advocacy yields 25+ research dollars. Where we donate matters! What climate change advocacy orgs do you donate to? (And: www.meaction.net/donate to fuel our work on infection-associated chronic illness, if you haven't lately!)

Fun fact: did you know that effort, policy, campaigning and activism directed towards climate change results in fewer greenhouse gas emissions and lower fossil fuel use Giving fossil fuel fatalism the middle finger works really nicely :) :) climateactiontracker.org/blog/eus-gre...

Donate - #MEAction Networkwww.meaction.net

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emily fraser 🌿🐌✨

I sincerely hope I'm preaching to the choir here, but in case I'm not: WEAR A FUCKING MASK. The more people wear them, the harder it is for violent assholes to feel comfortable doing absolutely awful shit like this. Right now, wearing a mask in public spaces is actually radical and noncomformist.

I've been debating posting about this but @crockettforreal.bsky.social was attacked yesterday for wearing a face mask. He was shoulder-checked down an escalator & sustained a concussion. The hate those of us trying to protect ourselves get- is completely out of control & it makes me so goddamn sad.

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emily fraser 🌿🐌✨

Hey fellow folks who are still at zero covid infections-- Evidently this survey could use some more control responses, let's help them out please. 🙏

Johns Hopkins is doing a long-COVID survey and apparently is having trouble finding controls -- people who haven't had COVID. If this is you, consider giving them some clicks. @violetblue.bsky.social thought you may want to boost. covid-long.com

Johns Hopkins COVID Long Studycovid-long.com The Johns Hopkins Bloomberg School of Public Health is conducting research about the COVID-19 pandemic. Participate in this one-time, 10-15 minute survey.

Thank you to Pleiades for publishing my snarky little CDC hate poem 🖤

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emily fraser 🌿🐌✨

If you try to meet the needs of the most vulnerable and marginalized, things improve for everyone. And that ought to be the starting point for all of our work in communities.

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emily fraser 🌿🐌✨

ME is a global health crisis. And millions more are getting sick following COVID-19 infections. It is estimated more than 55 million people worldwide are living with the debilitating effects of this condition. #GlobalVoiceForME #WorldMEDay

World ME Dayworldmealliance.org When pushing harder can make you sicker... Will you #LearnFromME this May 12th?

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emily fraser 🌿🐌✨

#MillionsMissing #pwME #MyalgicEncephalomyelitis #MEcfs #WorldMEDay #MEAwarenessDay

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emily fraser 🌿🐌✨

How #MyalgicEncephalomyelitis shrinks your world... Illustration by Kornelia Paulsen #pwME #MillionsMissing #WorldMEDay #MEAwarenessDay

This week’s #FlowerReport courtesy of my twice monthly trip out of my apartment for medical appointments. I usually share pics my husband has snapped for me— getting to see flowers in person is a rare treat because #MECFS is such a monster! #MEAwarenessDay

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emily fraser 🌿🐌✨

Saw some aurora last night outside Waterloo, Ontario! It was amazing! There’s a nice explanation of the physics here: www.rmg.co.uk/stories/topi... Essentially: Sun blasts us with charged particles, magnetic field funnels them to poles, particles zap atmospheric gases and make them glow.

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emily fraser 🌿🐌✨

Reply to

Alyssa Harad

I think, in this rapidly changing world where many choices we may have thought we had will be foreclosed, it’s probably worth cultivating curiosity and wonder about wherever we land.

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emily fraser 🌿🐌✨

Reply to

It's ME(Jaime)

“What is it going to take for researchers to take ME seriously?” she and her colleagues often wondered aloud. The morbid answer, they hypothesized, was a pandemic. 🧪(2/) time.com/5897992/long... #MECFS #LongCOVID

Studying Long-Haul Coronavirus Could Bring Benefits—and Recognition—to Forgotten Patientst.co Sufferers of the contested illness ME/CFS may benefit

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emily fraser 🌿🐌✨

This months #millionsmissingflowers is a pattern inspired by Campanula patula & Moneses uniflora which are both endangered in the UK. This pattern was created in honour of two severe ME patients Millie and Carla who are both currently in hospital struggling to get the treatment they need.

(A few days late but just in time for #FlowerReport!) On the last day of the month ppl w/ #MECFS & our allies are invited to share art of endangered flowers to call attention to ME & these often ignored victims of the extinction crisis. #millionsmissingflowers #togetherendangered

#FlowerReport

We need your help getting Long Covid into the FY25 budget! By May 7th please ask your Senators to sign onto the letter from Senator Markey, Kaine, & Duckworth calling for $1B+ in LC research funding Call guide here: longcovidmoonshot.com/call-guide/

Long Covid Moonshotlongcovidmoonshot.com

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emily fraser 🌿🐌✨

It's important to understand that we are living in a moment when terrible things are being increasingly normalized. MK and I talk about this in Let This Radicalize You. People who reject atrocity will be increasingly criminalized and vilified in popular narratives. It's already happening.

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emily fraser 🌿🐌✨

Congratulations, @exceedhergrasp1.bsky.social! Very hard to overstate how far the ME/CFS community has come in the last 5 years, and so much of it is due to Jaime.

#MEAction's Jaime Seltzer Selected for TIME100 Health 2024www.meaction.net We are thrilled to share with you that Jaime Seltzer, #MEAction’s Scientific Director, has been selected for TIME100 Health 2024, TIME’s new annual list of 100 individuals who most influenced global h...

They’re never going to stop. In 2074, “Covid lockdowns to blame for mass starvation & climate war”

This is so beyond infuriatingly embarrassingly bad

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emily fraser 🌿🐌✨

This is so beyond infuriatingly embarrassingly bad