Steve Joffe

@stevejoffe.bsky.social

153

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Research ethics, pediatric ethics, cancer ethics, genomethics, science policy @ UPenn. Grateful immigrant. Speak only for myself. He/him.

Posts Replies Media

1. Remarkable article (gift link) in today's @nytimes.com by Sarah Kliff & Azeen Ghorayshi. A few (of many) things especially caught my eye. www.nytimes.com/2024/07/15/h...

Promised Cures, Tainted Cells: How Cord Blood Banks Mislead Parentswww.nytimes.com Families pay thousands of dollars to store their children’s stem cells with the hope of a healthier future. But the cells are rarely useful, and sometimes contaminated.

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Steve Joffe

Thrilled to welcome 3 new faculty members to Geisinger's Department of Bioethics & Decision Sciences: Stephanie Kraft, @byrdnick.com & @katesaylor.bsky.social. Looking forward to seeing them continue their great work. You can read more about the department here: www.geisinger.edu/gchs/researc....

This, from Mark Rothstein & Leslie Wolfe in @hastingscenter.bsky.social Forum, is excellent. www.thehastingscenter.org/national-res...

National Research Act at 50: An Ethics Landmark in Need of an Updatewww.thehastingscenter.org The National Research Act was a landmark in research ethics oversight. But it needs to be updated for modern times, including research with biospecimens, AI, and xenotransplantation.

Terrific @statnews.bsky.social piece from @pennmehp.bsky.social's @annawexler.bsky.social on Neuralink's pathbreaking work and the challenges it poses for how we do science. www.statnews.com/2024/07/08/n...

The ethical implications of Elon Musk's unorthodox approach to medical sciencewww.statnews.com As Neuralink moves forward and continues challenging longstanding scientific norms, it must remain cognizant of bedrock ethical standards.

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A proposed address by the nation's 46th president, drawing on an address by the nation's first. fallows.substack.com/p/a-presiden...

A Presidential Address for This Momentfallows.substack.com ‘We’ll teach them how to say goodbye.’ A dramatic way for Joe Biden to demonstrate his strength, and the nation’s. An imagined speech, with 120 days to go until the election.

Mildred Thornton Stahlman, a name (and a piece of medical history) that I should have known but did not. What a remarkable life. Read to the end. www.nytimes.com/2024/06/30/s...

Mildred Thornton Stahlman, Pioneer in Neonatal Care, Dies at 101www.nytimes.com She developed one of the first modern intensive care units for premature babies, helping newborns to breathe with lifesaving new treatments.

1/ Pleased to share a new Open Access paper in Clinical Trials, led by Emily Largent, on the value of community consultation in clinical trials that request waivers of the requirement for informed consent (threadlet). journals.sagepub.com/doi/10.1177/...

The ethical value of consulting community members in non-emergency trials conducted with waivers of informed consent for research - Emily A Largent, Steven Joffe, Neal W Dickert, Stephanie R Morain, 2...journals.sagepub.com There is growing interest in using embedded research methods, particularly pragmatic clinical trials, to address well-known evidentiary shortcomings afflicting ...

From the Other Site.

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Steve Joffe

I urge you to read Dr. Fauci's transcribed interview where he goes into more detail about the threats to him and his family, including how the extreme rhetoric from politicians and other academics fuel this. This needs much more focus. Below, page one more clearly displayed. The rest follows 👇.

To the question of "is this what we have become", I *strongly* encourage you to watch this clip from CNN of Dr. Fauci talking about the threats to him and his family. Pay close attention to the guy on his right. Yes, this is what we have become. www.cnn.com/2024/06/03/p...

Takeaways from Fauci’s testimony at contentious House hearing on Covid-19 pandemic | CNN Politicswww.cnn.com Dr. Anthony Fauci, the former director of the National Institute of Allergy and Infectious Diseases, testified on Monday at a House subcommittee hearing about the US response to the Covid-19 pandemic ...

With all the understandable focus on what is happening in Gaza, please do not forget this. www.washingtonpost.com/world/2024/0...

A former Israeli hostage recalls the brutality of Hamas captivitywww.washingtonpost.com Moran Stella Yanai was abducted on Oct. 7 and was sure that her life “would end,” she said.

From The Other Site.

Good advice.

- bottom line up front slide - declarative slide titles - less text, bigger fonts - no, even bigger, seriously - accessible for all - don’t ever say I know you can’t read this but - never ever go over time - tell a story, start wide, narrow in, end wide - use the mic every time - end with takeaways

Thoughtful discussion. This is the most difficult bioethics issue today, in no small part because it's become so politicized. www.nytimes.com/2024/05/13/h...

Hilary Cass Says U.S. Doctors Are ‘Out of Date’ on Youth Gender Medicinewww.nytimes.com Dr. Hilary Cass published a landmark report that led to restrictions on youth gender care in Britain. U.S. health groups said it did not change their support of the care.

Leaves an important legacy. www.nytimes.com/2024/05/08/h...

Milton Diamond, Sexologist and Advocate for Intersex Babies, Dies at 90www.nytimes.com He pushed back against doctors who recommended surgery on infants born with ambiguous genitalia, arguing for acceptance of diversity.

From the Other Site. h/t @asarpatwari.bsky.social

Maybe the House Oversight Committee's hearings on antisemitism aren't sincere after all. www.inquirer.com/politics/pen...

Worth a read. www.wsj.com/articles/why...

Opinion | Why I Ended the University of Chicago Protest Encampmentwww.wsj.com Students demanded that we side against Israel, violating the core principle of institutional neutrality.

Thanks to @annawexler.bsky.social for sharing her perspective, as the mother of a child with a rare genetic disease and as a bioethicist, on the invaluable role that rare-disease online forums play and on the ethical challenges that they raise. jamanetwork.com/journals/jam...

My Digital Refugejamanetwork.com In this narrative medicine essay, a medical ethicist discusses the complexity of juggling the interests of members in online forums dedicated to rare

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Steve Joffe

Not even close. This is straight antisemitism

Hillel is the organization on campuses where Jewish students eat, pray, and gather together. Calling for a university to cut ties with Hillel is explicitly antisemitic. Not even a close call.

Just can’t make this stuff up. www.nytimes.com/2024/05/02/u...

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Don't forget to remind your grad students about ASLME's writing competition. Deadline is July 1 to give them time to account for your comments on their seminar papers! aslme.org/aslme-inside...

4th Annual Health Law and Anti-Racism Graduate Student Writing Competitionaslme.org The American Society of Law, Medicine, and Ethics (ASLME) is pleased to announce its 4th Annual Health Law and Anti-Racism Graduate Student Writing Competition with the goal of encouraging students to...

Assuming the events in here are as described, this is quite a story. www.statnews.com/2024/05/01/b...

Brain biopsies on 'vulnerable' patients at Mount Sinai set off alarm bells at FDA, documents showwww.statnews.com A STAT Investigation: Brain biopsies on "vulnerable" patients at Mount Sinai set off alarm bells at FDA, documents show.

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This is advocacy of genocide— from one of the highest-ranking members of Israel's cabinet.

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One of the most nuanced takes you will see - it is possible to abhor what is happening in Gaza AND have qualms about some of the groups organizing protests AND recognize that that most people participating do not share the views of those groups twitter.com/DovWaxman/st...

Dov Waxman on X: "I’m a scholar of the Israeli-Palestinian conflict and a longtime advocate for peace and for Palestinian rights. I have publicly opposed Israel’s occupation of the West Bank, and its blockade and now destruction of Gaza. I support the rights of students and faculty to peacefully…" / Xtwitter.com I’m a scholar of the Israeli-Palestinian conflict and a longtime advocate for peace and for Palestinian rights. I have publicly opposed Israel’s occupation of the West Bank, and its blockade and now destruction of Gaza. I support the rights of students and faculty to peacefully…

Nuanced piece. wapo.st/4bbGxEw

For Jewish students, protests stir fear, anger, hope and questionswapo.st For Jewish college students, this is a moment of intense and sometimes conflicting emotions as many college campuses erupt in loud protests.

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Congratulations to Dr. Harsha Thirumurthy on his appointment to Division Chief of Health Policy effective July 1! Read the full announcement here: medicalethicshealthpolicy.med.upenn.edu/events/in-th...

This article, from Israeli peacenik and professor David Shulman, is superb. archive.ph/cnfZy

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Steve Joffe

Congratulations to Dr. Emily Largent on her appointment to Division Chief of Medical Ethics effective July 1. Read the full announcement here: medicalethicshealthpolicy.med.upenn.edu/events/in-th...

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One of my favorite bits from Dennett is the second para. of this quote (the first is just there to indicate what he's talking about.)

Have to post this hilarious Daniel Dennett quote from The Other Site.