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Getting a post viral illness very young will ruin their lives. -someone who got ME/CFS at 12 years old.
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My kid couldn't taste food right for over a year but she was so little she couldn't explain what she was tasting, I can't imagine what preverbal or early verbal youngsters are experiencing right now.
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Even psychosomatic illnesses can harm the body and the mind. I know this experientially…and I also know that long covid is real because half my friends have it
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Well yeah it’s our brains and immune systems being inflamed, thanks for nothing once again from the Borreliosis patient community trying to get evidence in for 20+ years now. Can’t wait to hear the “lack of post-viral illness data” excuse again while we sit here with our *bacterial* illness damage!
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If they would actually look at what’s in our heads they would find evidence there they do not want to acknowledge, that’s why they don’t look or deliberately choose the wrong tools. Something easy to cash from the insurance. Sometimes someone gets an extra wrong MS diagnosis scare on top.
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Long Covid is real and the quality of life these children and adults experience after initial diagnosis is heartbreaking. They know their body but yet are told it’s all in their head.
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I have been told by doctors there’s nothing wrong, lungs clear on X-rays despite struggling to breathe and having zero stamina. I get sick very easy to anything going around. I feel like I have aged 10 years. Cannot imagine a teen going through this.
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BUT THEY LOST A WHOLE SEMESTER DOING SCHOOL ONLINE REMEMBER??
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My kid lost at least a full year just from the incompetence of virtual schools not knowing how to get her access to her classes and IT was no help. With that said, I fully believe long COVID could be impacting her and am thinking about bringing it up with her doctor. We just got a 504.
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Yeah, the “learning loss” is nothing compared to long COVID.
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Reading this reminds me of my post-mono hell in 10th grade Missed 40+ schooldays from late Sept to Xmas (not counting half-days), district declined at-home education, mom finally had to homeschool me for the rest of the year, our relationship is still fucked up from that 15+ years later
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It took ~2 years to get to ~90-95% of my prior "normal", which deteriorated further after pneumonia in college, & again after what was likely minimally-symptomatic COVID I meet mild ME/CFS criterion on my best days, periods kick me to moderate for ~2+ weeks, and my doc suspects fibromyalgia too
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If I hear that idea from doctors one more time, I'ma lose my mind. I know several people who've been told that or had it insinuated about their chronic pain situations. These quacks need to get with the program.
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